We SuFFER, We FIGHT, We Win!

 

P.O. Box 4186
Little Rock, AR 72214

ph: 501-650-0764

contactus@arscss.org

  • HOME
  • About UsClick to open the About Us menu
    • Contact Us
    • Board Members
  • ServicesClick to open the Services menu
    • S.O.A.R
    • Documents
  • ResourcesClick to open the Resources menu
    • What is Sickle Cell?
    • Pain Prevention
  • SCSS NEWSClick to open the SCSS NEWS menu
    • SCSS Wall of Fame
  • Donations
  • Sickle Cell CampClick to open the Sickle Cell Camp menu
    • Sickle Cell Camp 2013
  • Kid's Corner

SCSS NEWS

Upcoming Events: 


 

  • The Voice of Sickle Cell Newsletter

    Please access our current newsletter below:

    September 2013

  • SICKLE CELL IN THE NEWS:

    Sickle Cell Anemia Is On The Rise Worldwide

    by Rhitu Chatterjee

    July 17, 2013 3:02 AM

    Sickle cell anemia may not be as well-known as, say, malaria, tuberculosis or AIDS. But every year, hundreds of thousands of babies around the world are born with this inherited blood disorder. And the numbers are expected to climb.

    The number of sickle cell anemia cases is expected to increase about 30 percent globally by 2050, scientists said Tuesday in the journal PLOS Medicine. Countries in sub-Saharan Africa, where the disease is most common, will be the hardest hit.

    A child gets sickle cell anemia by inheriting two copies of a defective gene, one from each parent. The mutations cause red blood cells to collapse and form a crescent moon-like shape. These so-called sickle cells clump together and can't carry oxygen throughout the body.

    Click here to read more:
    http://www.npr.org/blogs/health/2013/07/17/202628070/sickle-cell-anemia-is-on-the-rise-worldwide

Ignorance about sickle cell disease is no excuse for poor NHS care. by Melody Davis
May, 17, 2013

Sarah Mulenga's death was a needless tragedy. Emergency staff must treat people who have sickle cell anaemia with respect.....

An inquest into the death of Sarah Mulenga has ruled that failures to follow basic procedures by London Ambulance staff contributed to her death two years ago. The two trainee paramedics called to attend to Sarah, who had sickle cell anaemia, in January 2011 failed to carry out a basic set of observations, treated her rudely and refused to take her to hospital because she had soiled herself. Another ambulance had to be called 45 minutes later, by which time her condition had deteriorated; she later died in hospital.

Click here to read more:
http://www.theguardian.com/commentisfree/2013/may/17/sarah-mulenga-sickle-cell-nhs-care  

Young 'superhero' battling sickle cell disease 

By Maurielle Lue, Fox 2 News


SOUTHFIELD, Mich. (WJBK) -

Sickle cell disease was discovered around a hundred years ago.  It is a painful disorder that seems to target specific ethnic groups and primarily African-Americans.  A brave young man is enduring blood transfusions while his family waits for a cure.

This is a story about a superhero.  Not Spider-Man, Iron Man or Batman, he is way stronger than them.  KJ McKenzie is using his power to fight sickle cell anemia.

At just five years old, KJ has regular blood transfusions -- clean, new blood to fight the sickle cell disease and minimize his chance of a stroke.  His mother calls the pack of blood her son's "super powers."


Click here to read more: http://www.myfoxdetroit.com/story/21291924/brave-boy-trying-to-beat-sickle-cell-anemia#ixzz2dyTvQQSB

 

 

Copyright 2013Sickle Cell Support Services. All rights reserved.

Web Hosting by Yahoo!

P.O. Box 4186
Little Rock, AR 72214

ph: 501-650-0764

contactus@arscss.org