Upcoming Events: 

Ignorance about sickle cell disease is no excuse for poor NHS care. by Melody Davis
May, 17, 2013

Sarah Mulenga's death was a needless tragedy. Emergency staff must treat people who have sickle cell anaemia with respect.....

An inquest into the death of Sarah Mulenga has ruled that failures to follow basic procedures by London Ambulance staff contributed to her death two years ago. The two trainee paramedics called to attend to Sarah, who had sickle cell anaemia, in January 2011 failed to carry out a basic set of observations, treated her rudely and refused to take her to hospital because she had soiled herself. Another ambulance had to be called 45 minutes later, by which time her condition had deteriorated; she later died in hospital.

Click here to read more:
http://www.theguardian.com/commentisfree/2013/may/17/sarah-mulenga-sickle-cell-nhs-care  

Young 'superhero' battling sickle cell disease